Rare disease patients don’t live the typical life of the general public. Going to the doctors over 3 times a week is not out of the...

When you or your child receives a rare disease diagnosis, your entire world changes. Life as you know it is dismantled and your...

Love is an incredible feeling that some dedicate their entire lives to seeking. Love is a mysterious, undeniable force that at times can...

It starts off with a feeling that something’s just not right. Whether that feeling comes from the person with a condition or the parent...