Jan 3, 20183 minMake Your Rare Dreams a RealityRare disease patients don’t live the typical life of the general public. Going to the doctors over 3 times a week is not out of the...
Dec 11, 20172 minChoosing CourageWhen you or your child receives a rare disease diagnosis, your entire world changes. Life as you know it is dismantled and your...
Jul 27, 20173 minUnconditional Love for a Rare PersonLove is an incredible feeling that some dedicate their entire lives to seeking. Love is a mysterious, undeniable force that at times can...
Jul 20, 20173 minThe World of RareIt starts off with a feeling that something’s just not right. Whether that feeling comes from the person with a condition or the parent...